For Patients and Families


Issues and Advice

Making Sense of Healthcare Financing
Published on Oct 15, 2016

In this webinar you will learn about the different versions of MassHealth; who is eligible for MassHealth and what forms need to be filled out to apply for a child with a disability; what is Premium Assistance and how to apply. Produced by The Federation for Children with Special Needs.

Overcoming Insurance Obstacles
Published on Oct 15, 2016

Leah Ledgewood, former Cleft Lip/Palate Craniofacial Coordinator, Department of Dentistry, Boston Children's Hospital, educates parents on the costs of dental treatment and how to navigate insurance to covers these costs.

American Academy of Pediatrics Offer Tips on Prevention and Management of Skull Deformities in Infants

There has been an increase in the last several years in the number of children with flattened heads, according to a clinical report from the American Academy of Pediatrics (AAP) entitled, "Prevention and Management of Positional Skull Deformities in Infants". The report says the increase is probably due to recommendations by the AAP that children be put to sleep on their backs to prevent Sudden Infant Death Syndrome (SIDS). The report notes that the condition is, on the whole, preventable and treatable.

Genetic Study of Nonsyndromic Cleft Lip and Palate Jacqueline T. Hecht, PhD, Professor of Pediatrics, University of Texas Medical School at Houston

What is the cause of my child's cleft lip and palate? This question is frequently asked by parents. Usually they are told that the cause cannot be determined for their child. the textbook explanation is that cleft lip is caused by a complex interaction of genes and the environment. Research in this field has begun to accelerate since the mapping of the human genome.

The following article is an update on the genetics of cleft lip and palate written by Dr. Jacqueline Hecth, a well-known geneticist researcher at the University of Texas. Many of the families in the Cleft Lip/Palate Program at Boston Children's Hospital have participated in her ongoing studies by contributing blood samples. Learn More