About Us



The leadership of the Foundation is composed of many dedicated professionals, parents, affected adults and other interested individuals who recognize the importance of providing access to the best information and guidance in order to help the families of affected children find quality care. They all serve on a volunteer basis, and their many different viewpoints inform the shaping of policy and guidance of the organization.

    • John B. Mulliken, MD
    • Professor of Surgery
    • Harvard Medical School
    • Director, Craniofacial Center
    • Children's Hospital, Boston, Massachusetts
    • Co-Director, Vascular Anomalies Center
    • Children's Hospital, Boston, Massachusetts
    • M. Samuel Noordhoff, MD
    • Professor of Surgery
    • College of Medicine, Chang Gung University, Taipei, Taiwan
    • Emeritus Chief of Plastic Surgery
    • Chang Gung Memorial Hospital, Taipei, Taiwan
    • Ronald P. Strauss, DMD, PhD
    • Dental Friends Distinguished Professor and Chair
    • Department of Dental Ecology
    • Professor, Department of Social Medicine
    • UNC School of Dentistry, Chapel Hill, North Carolina