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Our Mission

The Foundation for Faces of Children is dedicated to improving the lives of children with craniofacial differences, including cleft lip, cleft palate, and other head and facial differences. Our mission is to provide patients and families with the most accurate, up-to-date, and accessible information about facial differences, and to advocate for the best care possible for children with facial differences.

We achieve this by collaborating with leading specialists, endorsing the team approach to care and partnering with individuals and organizations with similar goals. We are a not-for-profit organization entirely supported by private donations, grants, and fund-raising initiatives.

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What We Do

What's Happening at FFC

Latest News

The Power of Mind as a Tool for Coping

In the Fall of 2015, The Foundation for Faces of Children took its first step toward the goal of providing our families with programs promoting positive self-esteem and strategies for coping with anxiety. The event, “Facing the World: Optimal Strategies for Children & Families with a Facial Difference,” launched our plan to offer better psychological support to our craniofacial families. One aspect of the program highlighted techniques for focusing on mindfulness to elicit a relaxation response and reduce feelings of anxiety and depression.

Early endoscopic release of craniosynostosis

The only technique available in the early days of surgical correction of craniosynostosis was the simple release of the fused suture via a large scalp incision. While effective in some children, this method had a high failure rate because the cranial bones would fuse back together before the brain was able to re- create the normal shape of the skull.

Finally, a Law to Make You Smile

On August 6, Governor Deval Patrick signed a law mandating insurance coverage for treatment of cleft lip and/or palate for children under the age of 18. A ceremonial signing, attended by supporters, was held at the State House on October 1.

Robin Sequence: More Than a Receding Chin

Robin Sequence: More Than a Receding Chin By John Mulliken, MD, Director, Craniofacial Centre, Boston Children’s Hospital Children born with Robin sequence (named for an early 20th century French physician; pronounced row-BAN) have a lower jaw that is smaller than normal (micrognathia) or set back from the upper jaw (retrognathia).

Reshaping the Head: Treating Unilateral Coronal Synostosis

A baby’s brain grows rapidly before birth and during infancy. The brain has room to grow, because, early on, the head is not solid. Instead, it consists of a number of bones, known as plates, separated by narrow openings. As the brain enlarges, the plates also gradually grow toward each other. The junctions where the plates meet are called sutures.

Handling Teasing and Making Friends

We all have differences. Our looks or how we speak or act can make other people curious about us and may lead to teasing and bullying. Children and teens with facial differences can sometimes feel left out or put down through no fault of their own. Preparing for attention and questions from classmates, strangers, or others can help build confidence in social situations.

Evaluation Begins with Baby Talk

Children with cleft lip and palate and other craniofacial conditions generally have normal language development — learning of words and sentence structure — but may have problems producing the different sounds necessary for speech. Speech-language pathologists, who have completed a two-year master’s degree program as well as a fellowship, are important members of the craniofacial team at Children’s Hospital Boston.

FFC’s first Teen and Young Adult Forum

“I’m excited to finally be with my ‘peeps,’” said Olivia Chartand of Ludlow, Massachusetts, at FFC’s first Teen and Young Adult Forum, held at Children’s Hospital Boston. Never before had she had the opportunity to meet others like her born with cleft lip and palate.

In Gratitude – Jane McDaid

Our heartfelt thanks to Jane McDaid, who recently resigned from her position as FFC co-president after leading the organization for seven years.

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Upcoming Events

Every year the Foundation for Faces of Children organizes and executes several social and fundraising events to support the programs offered to families and children.

Men’s Hockey Game

March 11 @ 3:00 pm - 6:00 pm

Making Faces

April 7 @ 10:00 am - 3:00 pm

Mother’s Day Brunch

May 5 @ 10:00 am - 2:00 pm