Robin Sequence: More Than a Receding Chin By John Mulliken, MD, Director, Craniofacial Centre, Boston Children’s Hospital Children born with Robin sequence (named for an early 20th century French physician; pronounced row-BAN) have a lower jaw that is smaller than normal (micrognathia) or set back from the upper jaw (retrognathia).
When a child is born in Alaska with a craniofacial condition, there is a good chance the family will become acquainted with the Foundation for Faces of Children. That is the goal of Cheri Scott, one of the founders of Stone Soup Group, an organization based in Anchorage that assists families who care for children with special health care needs.
We all have differences. Our looks or how we speak or act can make other people curious about us and may lead to teasing and bullying. Children and teens with facial differences can sometimes feel left out or put down through no fault of their own. Preparing for attention and questions from classmates, strangers, or others can help build confidence in social situations.
Only few people understand facial disfigurement. Betsy Wilson set out to change that through her support and information network, Let’s Face It (www.faceit.org), which provides a broad range of resources for individuals whose faces are disfigured for any reason—burns, cancer, accidents or craniofacial conditions—and those who care for them. The Foundation for Faces of Children is one of those resources.
Many families make their first contact with the Foundation for Faces of Children via email. When they happen to be Spanish-speaking, Maria Carmen Thompson gets involved. The Mexico native spoke no English when she arrived in the U.S. in 1989. Since becoming fluent, she has used her bilingualism in corporate and educational settings. But Thompson regards her volunteer role as Spanish translator for the Foundation as special.