Medical Journals can provide a wealth of information. Here are some of the ones we recommend.
- The Cleft Palate Craniofacial Journal – www.cpcjournal.org
- Smiletrain Library – www.smiletrain.org/medical/medical-research-library
- PubMed National Library of Medicine – www.pubmed.gov
- Boston Children’s Hospital Cleft and Craniofacial Center – https://www.bostoncleftandcraniofacial.org/patient-resources
Brochures and Pamphlets
BCH Guide: Deformational Plagiocephaly
A guide for Deformational Plagiocephaly – deformation of the skull as a result of pressure during pregnancy or infancy and treatment options.
BCH Guide: Robin Sequence
A guide for Robin Sequence – a grouping of anomalies resulting in airway obstruction to varying degrees.
BCH Guide: Microtia
A guide for Microtia – a deformity or reduction in size of the external ear, sometimes associated with hearing loss, and a discussion of timing and options for treatment.
BCH Guide: Cleft Lip and Palate
A guide for Cleft Lip and Palate – another source of information for families.
BCH Guide: Apert Syndrome
A guide for Apert Syndrome – a combination of craniofacial and hand/foot anomalies with implications for the teeth, bite, and other areas.
Cleft Palate and Craniofacial Teams in the United States and Canada: A National Survey of Team Organization and Standards of Care,”
Ronald P. Strauss, D.M.D., Ph.D. The Cleft Palate-Craniofacial Journal, Volume 35, No.6, 473-480, 1998
Prenatal Sonographic Diagnosis of Major Craniofacial Abnormalities
Granger B. Wong, M.D., D.M.D., John B. Mulliken, M.D. Beryl R. Benacerraf, M.D. Plastic and Reconstructive Surgery 108: 1316-1332, 2001.
Treacher Collins Syndrome
Booklet by John B. Mulliken, M.D. Children's Hospital Boston, Craniofacial Centre, 300 Longwood Avenue, Boston, MA 02115
Single-Suture Craniosynostosis
Booklet by John B. Mulliken, M.D. Children's Hospital Boston, Craniofacial Centre, 300 Longwood Avenue, Boston, MA 02115
Prenatal Diagnosis of Cleft Lip
John B. Muliken, M.D., and Beryl R. Benecerraf, M.D. Journal of Ultrasound Medicine 20 (11):1159-1164, 2001
Hemifacial Microsomia
Booklet by John B. Mulliken, M.D. Children's Hospital Boston, Craniofacial Centre, 300 Longwood Avenue, Boston, MA 02115
Beyond Easy Answers: Prenatal Diagnosis and Counseling During Pregnancy
Ronald P. Strauss, D.M.D., Ph.D The Cleft Palate-Craniofacial Journal: Vol. 39, No. 2, pp. 164-168, 2002 (article)