The Foundation for Faces of Children once again thanks the Parks family for their continued support through this annual fundraising event. In March, the Syracuse Crunch hockey team took to the ice for their annual “Crunch Classic” hockey game, once again donating the proceeds to the Foundation for Faces of Children.
On May 14, several parents along with a number of speech therapists and clinicians were fortunate to hear a lecture on speech disorders related to cleft palate. The event was sponsored by FFC and took place at Boston Children’s Hospital.
In the Fall of 2015, The Foundation for Faces of Children took its first step toward the goal of providing our families with programs promoting positive self-esteem and strategies for coping with anxiety. The event, “Facing the World: Optimal Strategies for Children & Families with a Facial Difference,” launched our plan to offer better psychological support to our craniofacial families. One aspect of the program highlighted techniques for focusing on mindfulness to elicit a relaxation response and reduce feelings of anxiety and depression.
In the past six months, two important studies have been published from the Department of Dentistry at Boston Children’s Hospital (BCH). These studies investigate the affects of using the Latham appliance in infants with unilateral complete cleft lip and palate.
The only technique available in the early days of surgical correction of craniosynostosis was the simple release of the fused suture via a large scalp incision. While effective in some children, this method had a high failure rate because the cranial bones would fuse back together before the brain was able to re- create the normal shape of the skull.
On August 6, Governor Deval Patrick signed a law mandating insurance coverage for treatment of cleft lip and/or palate for children under the age of 18. A ceremonial signing, attended by supporters, was held at the State House on October 1.