What a FFC Scholarship Means to Me
Bridget Burke is FFC's 2013 Jane C. McDaid Scholarship Recipient. She tells us what the FFC scholarship means to her and what she has achieved in the last 7 years.
2019 CCA Retreat Experience
Read about the Pendleton family's experience at the CCA's Family Retreat and Educational Symposium in Scottsdale and how Aimee made many new friends.
2018 CCA Retreat Experience
Read about Nate and Joyelle's experience at CCA's 2018 Family Retreat and Educational Symposium.
A “Dream” come true
I was thrilled that my dream was going to come true. To have a dream come true after going through a big operation was truly the best part to end a painful procedure. I have never experienced a vacation that could beat this one. It was the best “Dream” ever.
Think positive whoever you are!
I was born with a birth defect which made everyone think that I would be weak and dying. But they were wrong; except one thing, I do have a birth defect. It makes me a very special and gifted child.
Elan’s Wide Smile
In many ways I think this journey has enriched our lives. Of course we have our struggles, and certainly sending this happy little baby in for surgery every few months has not been easy. But becoming a part of the Children’s Hospital and cleft lip-palate communities has been a real blessing.
Parent’s Story – Kirby Vigneau-Murphy
Our son Owen is a very active three-year-old who just happened to be born with a unilateral cleft lip and palate. The youngest of our four children, he is also our only child born with a cleft lip and palate. I remember that even though we were experienced parents, we were very nervous about all the surgeries he would have to undergo when he was a baby.
Personal Story – Jennifer Dodwell
As someone who was born with hemifacial microsomia, I certainly had my fair share of surgeries and doctors appointments growing up. By the time I was fifteen, I had been through thirteen surgeries, or roughly one per summer. As I’m sure almost everyone reading this can relate to, surgeries are never pleasant or fun.
Andrew Livingstone – Treating Infant Hemangiomas
In 1989, Andrew Livingstone was born without a blemish, but two weeks later, a strawberry red growth began to bloom on his upper lip. At age three months, the mass enlarged quickly, extending up to his nose. It became an open sore, which would scab over, only to ulcerate again and again. Andrew’s pediatrician diagnosed the condition as a hemangioma and referred his parents, Seth and Marcy, to renowned expert, plastic surgeon John Mulliken, MD, at Children’s Hospital Boston.
Emily – A sisters story
In Your Own Words My name is Emily. My older brother was born with a cleft lip and palate. If you asked me if that makes him different than any other teenage boy, I’d tell you no.